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Feature
Didn’t Know What I Didn’t Know:
Cancer Survivorship
By Thomas Rapisardo, MD, Department of Supportive Oncology, Levine Cancer Institute
S ome of you may have seen an article on cancer
survivorship in USA Today entitled “Life After bypass surgery (another pediatric Hodgkin’s lymphoma survivor). My
Cancer: More Survivors Live Longer, Face New Health career has evolved and now is mainly directed at addressing cancer
survivorship. To say my learning curve has been steep would be an
Challenges.” The article profiled a 71-year-old retired understatement. It was somewhat heartening to hear from a few of the
cancer nurse who had treatment for Hodgkin’s lymphoma in 1972, oncologists that even they have difficulty keeping up. In fact, there is a move
but was only able to get the advice to “try taking a good multivitamin to sub-specialize in specific cancer sections to maintain mastery. Thanks
pill” from her radiation oncologist; he admitted he did not know to major progress in successfully treating cancer, now there are many more
anything else to do to keep the problem from coming back. cancer survivors. The issue is that the very success of cancer treatment has
The woman subsequently developed “three more cancers and heart (thankfully) significantly extended the life and health of patients such that
damage, probably linked to the aggressive radiation and chemotherapy the eventual after-effects of therapy may start exacting a toll.
treatments that helped save her life.” Certainly, things have improved Late-effects of radiation seem to accelerate aging in the
therapeutically since then, but the main point of the article was that exposed tissues, contributing to premature atherosclerosis and skin
just knowing what to expect and what to look for would make a major cancers. Muscle fibrosis may develop in some patients. The lifesaving
contribution to subsequent patient care. chemo cocktails, which include Anthracyclines like doxorubicin/
There is now an actual mandate by the Commission on Cancer Adriamycin or trastuzumab/Herceptin for breast cancer, adversely can
(CoC) to provide Cancer Survivorship Care Plans to patients who have affect cardiac function years after treatments.
completed a course of treatment to usher them into the next stage of their As a primary care internal medicine physician, I found it nearly
life. The first time this got my attention was when one of our pediatric impossible to keep up in all specialties, much less the complexity of
oncologists gave a grand-rounds more than 15-20 years ago profiling cancer care. The information in survivorship care plans is key to care
what long-term issues we could expect to see in adult patients who were continuity and, when absent, hurts the patient and the provider’s ability to
survivors of pediatric cancers and treatments. know what to anticipate for that individual. Thankfully, this movement to
It was timely advice, so I did not dismiss the vague symptoms from a provide a Cancer Survivorship Care Plan document should remedy the
fairly healthy 40ish-year-old woman who subsequently needed coronary problem substantially, if completed with accuracy and completeness.
We can learn a lot from our pediatric oncology
colleagues by following what they have
been doing for decades. For adult patients,
there are protocol-driven evidence-based
guidelines accessible through the National
Comprehensive Cancer Network (NCCN)
or American Society of Clinical Oncology
(ASCO) websites or by contacting Cancer
Survivorship clinics, if geographically
accessible.
The most important guideline
will be from the Cancer
Survivorship Care Plan;
make sure your patients
get one as they move out
of care for their cancer
and back into your care.
The information in survivorship care plans is key to care continuity.
Mailing Address: Center for Supportive Care and Survivorship n 711 E. Morehead St., Charlotte, NC 28202
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